Over the past several months I have had the pleasure of exchanging emails with a gentleman in a very similar situation to my own. Our medical ailments are different but our overall condition is the same in that we are both years past what doctors guesstimated to be our expiry dates.
Our way of thinking and dealing with this whole situation at least similar. We do not want to be a burden and we want to at least try to make this whole process as easy as possible on those around us. Issues are minimized, blown off as no big deal. “I am fine with all of this, don’t worry about me.”.
He is almost 5 years past his doctor projected expiry date. In that 5 years he has faced and over come major medical obsticals. Each time minimizing the seriousness of his condition. Now I can so easily relate to him saying “each medical hoop you jump through takes a lot out of you”. It becomes harder and harder to put on the “don’t worry, I am fine face”
It has reached the point when He knows the end is really nearing. He just does not feel he has the energy to clear the next medical obstacle put before him.
I had to go to email to get the wording: “I have been dying for so long that my family has become so used to the idea it is almost like now it is no big deal to them. Now is when I need the support. Have they lived with this idea for so long they have become immune to feelings about it?”